Archive for the ‘Events’ Category
There are several fundraisers and EB-related events being held across the country this summer that offer opportunities to interact with others faced with EB and raise awareness about the skin disorder.
If you know of any other events taking place, let us know. Just send all of the details (date, time, location, cost to attend if it applies and info about the event itself) to Leslie.Rader@hollisterwoundcare.com and we’ll be sure to get the word out to the rest of the EB Resource community.
And if you do happen to attend any of the events we’ve listed and would like to share your thoughts in words or pictures, we’d love to hear from you. Thanks!
June 16-19
2010 Patient Care Conference (Cincinnati, OH)
DebRA hosts this free conference held every other year that enables patients, families and caregivers to hear from medical specialists and vendors about the latest clinical news and research findings and meet with each other to share information.
June 20-25
Camp Wonder (Livermore, CA)
Young patients (ages 7-16) living with painful skin diseases can take part in a fun, FREE week-long camp of outdoor activities like swimming, hiking, fishing and archery and indoor fun, too, including theater and arts and crafts, all sponsored by the Children’s Skin Disease Foundation.
August 1-7
EB Survivors Camp (Park City, UT)
United Survivors with EB (USeb) sponsors this summer camp offering great opportunities for young patients to interact and have fun. To apply for the camp, click here.
August 6
1st Annual Crossgates Golf Outing (Millersville, PA)
Dave Cornman hosts a new golf fundraiser at Crossgates Golf Course with all proceeds going to DebRA for its various programs and services.
August 8-13
Camp Dermadillo (Burton, TX)
Part of Camp Discovery for kids ages 9-15 and located between Houston and Austin in the rolling hills of Washington County, this is a unique camping and retreat facility designed to enrich the lives of people with special needs and is sponsored by the American Academy of Dermatology. And I’m happy to report that this summer I will get the opportunity to serve as a camp counselor there, too!
September 11
2nd Annual Butterfly Ball (Sonoma, CA)
This annual event benefits The Butterfly Fund and Miracles through Music to raise funds and awareness to improve the lives of people living with epidermolysis bullosa. The organizations are currently accepting donations and silent auction items for the event.
Updated: Thursday, 10 Jun 2010, 9:15 AM EDT
Published : Thursday, 10 Jun 2010, 9:15 AM EDT
Endless food, live music, and craft beers from around the world … served amid the dazzling aquatic exhibits at the Florida Aquarium. SudsFest 2010 promises to be quite an event, with all proceeds benefiting marine science education and marine animals affected by the Gulf oil spill. Tom Wagner from the Aquarium and Chef Paul Norton from Datz joined Good Day to discuss the fundraiser and offer a sample of the cuisine.
The Florida Aquarium’s SudsFest 2010 will be held Saturday, June 12, from 8 p.m. to midnight. Tickets are $50 in advance ($45 for members) or $60 at the door. For more information and to purchase tickets, (813) 273-4030 or go to www.sudsfest.com