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Archive for the ‘Events’ Category

Wednesday, July 7, 2010 @ 06:07 PM Ballywho News

At Ballywho Interactive, we think about social media nearly 24/7. A few of us even have dreams about Twitter, Facebook, Foursquare— you name it. But even for us, sometimes it’s important to remember our messages on social media don’t live in a vacuum.

Real people with real opinions are reading the content we’re sharing online every single day. And since hundreds, in some cases thousands, of them never respond back, it’s easy to forget they’re out there. So when Mashable, the Social Media Guide website we scan religiously, announced its inaugural Social Media Day we couldn’t have been more excited.

The site’s goal was to “connect thousands of people face-to-face in their local communities, provide resourceful discussions around social media, and plant a seeds for ongoing monthly meetups that enable people to network and learn from one another” on June 30 worldwide.

The organizer in Tampa, social media strategist Kyle Williams (@kylewilliams2 on Twitter), said when he first heard about Social Media Day, he got started on the plans to hold it at the Tampa Bay Brewing Company in Ybor City right away.

And word of the event spread quickly online. Of course, we were in. And so were the dozens who showed up including many well-known Tampa tweeters: Tampa Tribune food writer @JeffHouck, Blue-haired blogger @missdestructo and writer and producer of Midlife Road Trip @McMedia.

A few TV personalities including WFLA-TV chief meteorologist Steve Jerve (@sjervewfla) didn’t want to miss the event, along with his Storm Team 8 coworkers Megan Hatton (@meganhatton) and social media newcomer Brooks Garner (@brooksgarner) who admitted he’d never been to a tweetup of any kind before.

Even semi-retired film critic Bob Ross (@bobross48) showed up. He admitted he likes his place on Facebook more, but did manage to tweet from the event: “Just attended my first mashable meetup. Great fun, but everyone says I need to tweet more. I’ll try.”

Mashable hopes the next Social Media Day meetup will happened worldwide on July 28. Will you be there? Here are some tips before you go:

  1. Bring plenty of business cards. Don’t be caught off guard when someone asks for your contact information.
  2. Introduce yourself to people you have already “met” in the social media world. It’s important to put names to the avatars.
  3. Introduce yourself to people you haven’t met. If you’re not normally outgoing, you may want to go with a friend or group of friends.
  4. Don’t be afraid to ask questions about social-media related things you don’t understand. Many people who go to these events have a wealth of knowledge or can at least point you in the right direction.
  5. Make sure your smartphone is fully charged. You want to be able to tweet, Facebook, take pictures, etc.
  6. Be a gracious guest. Thank the organizers and tip the wait staff or bartenders.
  7. Follow up with people you met online. Accept their friend requests, follow them back on Twitter— stay connected.
Monday, June 14, 2010 @ 12:06 PM Ballywho News

There are several fundraisers and EB-related events being held across the country this summer that offer opportunities to interact with others faced with EB and raise awareness about the skin disorder.

If you know of any other events taking place, let us know. Just send all of the details (date, time, location, cost to attend if it applies and info about the event itself) to Leslie.Rader@hollisterwoundcare.com and we’ll be sure to get the word out to the rest of the EB Resource community.

And if you do happen to attend any of the events we’ve listed and would like to share your thoughts in words or pictures, we’d love to hear from you. Thanks!

June 16-19

2010 Patient Care Conference (Cincinnati, OH)

DebRA hosts this free conference held every other year that enables patients, families and caregivers to hear from medical specialists and vendors about the latest clinical news and research findings and meet with each other to share information.

June 20-25

Camp Wonder (Livermore, CA)

Young patients (ages 7-16) living with painful skin diseases can take part in a fun, FREE week-long camp of outdoor activities like swimming, hiking, fishing and archery and indoor fun, too, including theater and arts and crafts, all sponsored by the Children’s Skin Disease Foundation.

August 1-7

EB Survivors Camp (Park City, UT)

United Survivors with EB (USeb) sponsors this summer camp offering great opportunities for young patients to interact and have fun. To apply for the camp, click here.

August 6

1st Annual Crossgates Golf Outing (Millersville, PA)

Dave Cornman hosts a new golf fundraiser at Crossgates Golf Course with all proceeds going to DebRA for its various programs and services.

August 8-13

Camp Dermadillo (Burton, TX)

Part of Camp Discovery for kids ages 9-15 and located between Houston and Austin in the rolling hills of Washington County, this is a unique camping and retreat facility designed to enrich the lives of people with special needs and is sponsored by the American Academy of Dermatology. And I’m happy to report that this summer I will get the opportunity to serve as a camp counselor there, too!

September 11

2nd Annual Butterfly Ball (Sonoma, CA)

This annual event benefits The Butterfly Fund and Miracles through Music to raise funds and awareness to improve the lives of people living with epidermolysis bullosa. The organizations are currently accepting donations and silent auction items for the event.

Thursday, June 10, 2010 @ 03:06 PM Ballywho News

Updated: Thursday, 10 Jun 2010, 9:15 AM EDT
Published : Thursday, 10 Jun 2010, 9:15 AM EDT

    Endless food, live music, and craft beers from around the world … served amid the dazzling aquatic exhibits at the Florida Aquarium. SudsFest 2010 promises to be quite an event, with all proceeds benefiting marine science education and marine animals affected by the Gulf oil spill. Tom Wagner from the Aquarium and Chef Paul Norton from Datz joined Good Day to discuss the fundraiser and offer a sample of the cuisine.

    The Florida Aquarium’s SudsFest 2010 will be held Saturday, June 12, from 8 p.m. to midnight. Tickets are $50 in advance ($45 for members) or $60 at the door. For more information and to purchase tickets, (813) 273-4030 or go to www.sudsfest.com